See all the latest news, blogs and updates from the medical sector.
News
Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
Story
Facing all obstacles and striving for a career of my choice
Faye, who lives with MPS IV Morquio, has overcome many hurdles to find accessible opportunities which allowed her to find the job role...
29/01/2021
News
MPS Society welcomes new UK Rare Diseases Framework
MPS Society welcomes new UK Rare Diseases Framework, a national vision to improve the lives of those living with rare diseases.
22/01/2021
Blog
Lockdown positivity
We asked you what you're doing to keep positive and stay healthy during lockdown this time round. The COVID-19 pandemic has affected...
15/01/2021
Condition
Treatment for Metachromatic Leukodystrophy (MLD) approved by the European Commission
MLD is a very rare, fatal genetic disorder caused by mutations in the ARSA gene which lead to neurological damage
22/12/2020
News
Frequently asked questions about the vaccination programme for COVID-19
The BIMDG has prepared these responses to frequently asked questions about the vaccine progamme for COVID-19.
18/12/2020
Blog
Daniella Vandepeer discusses her clinical trial experience
Daniella Vandepeer shares her experiences of family life on a clinical trial including her motivation for joining a trial, the difficulties the family faces and what she feels is important for others considering joining a clinical trial.
13/12/2020
Blog
Louise's story - The Big Give Christmas Challenge 2020
Meeting families in person has supported my learning about these conditions and my understanding about the challenges families face.
23/11/2020
Story
Sheryl's story - The Big Give Christmas Challenge 2020
I’m Sheryl and I'll be supporting the Big Give Christmas Challenge because MPS Society events are important at every stage of your journey
17/11/2020
Story
Sam's story - The Big Give Christmas Challenge 2020
Sam is 18 living with ML III and for him, the family events meant connecting with others who understand what he's going through.
