International MPS Awareness Day on 15 May is an important date to highlight the rare and often unknown MPS conditions. Each year we celebrate for a week by raising awareness for these conditions and sharing the stories of those affected.
MPS Awareness Week
12-18 May 2025
Drum roll, please ... this year's MPS Awareness Week campaign has raised over £25,000 making it one of our biggest and best weeks!Â
It is because of you that we are able to support families and individuals affected by MPS, Fabry and related conditions. We thoroughly enjoyed seeing all your pictures from your wear it blue events, bakes sales and awareness activities. Thank you so much!
Read the incredible stories on how you have raised this amazing total for MPS Awareness Week in our fundraising blog. So many schools, community groups and individuals have all taken on remarkable challenges for their loved ones and people affected by rare and complex conditions.Â
How to get involved
Living with a rare condition puts a massive strain not only on physical but also on mental health, from waiting for a diagnosis to living with a life-limiting condition, it’s hard and a lot to deal with. That’s why we are here to provide specialist support for our community.
Get involved this MPS Awareness Week, there are so many ways you can make an impact!
Wear it BlueÂ
Raise awareness and fundraise at your school, community group or work place by organising a Wear it Blue event. To take part, simply share your plans with us and see our gallery below for some inspiration and all the fun there is to be had.
Spread the word
Help by sharing social posts and awareness campaigns, stories and blue selfies far and wide with your family, friends and connections to start a conversation.
Have some fun with these resources
Thank you in advance for every pound you raise and every post you share!
