International MPS Awareness Day on 15 May is an important date to highlight the rare and often unknown MPS conditions. Each year we celebrate for a week by raising awareness for these conditions and sharing the stories of those affected.
MPS Awareness Week
11-17 May 2026
It has been another spectacular MPS Awareness Week! It was amazing to see so many fundraisers from bake sales, raffles, bucket collections, glitter tattoo stalls, golfing days, hiking and running challenges, birthday and wedding celebrations. Your incredible fundraising is approaching £12,600 and we cannot wait to share a final total with you soon, thank you so much!
Help give children and families the chance to live a rare life better
As he accepted the Patient Advocate Leader award, Group CEO Bob Stevens reminded us, that:
Rare diseases do not recognise borders and neither should support, research access or compassionate care.
This MPS Awareness Week, we are celebrating the strength and impact of coming together. When families, researchers, clinicians and industry join forces, they have the power to drive real and meaningful change.
How to get involved
By wearing it blue, organising your own event or donating, you are helping to open doors to better treatments, stronger support networks and brighter futures for those living with rare conditions. Your support truly makes a difference.
If you would like to donate towards this year’s Awareness Week or set up a fundraiser…
You can also donate or pay in fundraising via our website.
Wear it Blue
Raise awareness and fundraise at your school, community group or work place by organising a Wear it Blue event. To take part, simply share your plans with us and see our gallery below for some inspiration and all the fun there is to be had.
Spread the word
Help by sharing social posts and awareness campaigns, stories and blue selfies far and wide with your family, friends and connections to start a conversation.
Have some fun with these resources
Thank you in advance for every pound you raise and every post you share!
