MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Coming to terms with an MPS diagnosis - The Emotional Journey by Claire Garthwaite
MPS National Conference 2019 Coming to terms with an MPS diagnosis - The Emotional Journey by Claire Garthwaite A parents perspective
Fabry and my family by Jane McKenna
Focus on Fabry - Expert and Patient Meeting 2019 Fabry and my family by Jane McKenna A different journey
Fabry disease - Neurology update by Mark Roberts
Focus on Fabry - Expert and Patient Meeting 2019 Fabry disease –Neurology Update by Dr Mark Roberts Manchester Centre for Adult Metabolic...
Fabry Disease - What to look for in children by Anupam Chakrapani
Focus on Fabry - Expert Patient Meeting 2019 Fabry Disease – What to look for in children by Anupam Chakrapani Paediatrician at Great...
Fabry diseases - What causes my symptoms? by Dr Ana Janovic and Mark Roberts
Focus on Fabry - Expert and Patient Meeting 2019 Fabry disease – What causes my symptoms? By Dr Ana Janovic and Mark Roberts Manchester...
Fabry in Families by Jacqueline Adam
Focus on Fabry - Expert and Patient Meeting 2019 Fabry in Families by Jacqueline Adam Clinical and Communications Lead at MPS Commercial
Family tree and the role of the genetic counsellors in metabolic MDT clinics by Dr Karolina Stepien
Focus on Fabry - Expert and Patient Meeting 2019 Family tree and the role of the genetic counsellors in metabolic MDT clinics by Dr...
How are drugs approved and audited? by Tom Kenny
Focus on Fabry - Expert and Patient Meeting 2019 How are drugs approved and audited? by Tom Kenny Role of CRG, NHSE and NICE
How the Fabry app can help clinicians to better understand pain in Fabry disease by Uma Ramaswami
Focus on Fabry - Expert and Patient Meeting 2019 How the Fabry pain app can help clinicians to better understand pain in Fabry disease by...
Moving to Semi or Full independence for ERT infusions by Catherine Stewart
MPS National Conference 2019 Moving to Semi or Full independence for ERT infusions by Catherine Stewart Clinical Nurse Specialist at...
MPS Cardiac Masterclass
MPS National Conference 2019 Investigation and Management by Chris Hendriksz on behalf of Dr Petra Jenkins
Mutations and predictions of disease severity by Derralynn Hughes
Focus on Fabry - Expert and Patient Meeting 2019 Mutations and predictions of disease severity by Derralynn Hughes Honorary Haematologist...
New therapies for Fabry disease by Derralynn Hughes
Focus on Fabry - Expert and Patient Meeting 2019 New therapies for Fabry disease by Derralynn A Hughes Lysosomal Storage Disorders Unit,...
Respiratory complications and interventions/ventilation/tracheostomy in adult MPS by Mr C. Gadepalli
MPS National Conference 2019 Respiratory complications and interventions/ ventilation / tracheostomy in adult MPS by Mr C. Gadepalli MD,...
Shifting the onset of disease into the adult world by Uma Ramaswami
MPS National Conference 2019 Shifting the onset of disease into the adult world by Uma Ramaswami Consultant in Metabolic Disorders at...
Small Molecules and Scissors - An overview of current treatments by Atul Mehta
MPS National Conference 2019 Small Molecules and Scissors - An overview of current treatments by Atul Mehta Consultant Haematologist at...
Smartphone app to monitor symptoms in Fabry patients by Uma Ramaswami
MPS National Conference 2019 Smartphone app to monitor symptoms in Fabry patientsby Uma Ramaswami LSDU, Information Governance, Royal...
Transferring from paediatrics to adult services nurses prospective by Jane Roberts and Stuart Hulme
MPS National Conference 2019 Transferring from paediatrics to adult services nurses prospective by Jane Roberts MPS II /VIand Stuart...