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Poster presentation - Audit of rare disease clinical trial support service


Patient retention in rare disease clinical trials is crucial when considering the limited patient numbers available. It has been reported that 18% of patients randomised into a clinical trial end up withdrawing.* This number is predicted to be even higher in rare disease clinical trials. There is a considerable burden to the patient/their family to take part in a clinical trial.

This audit aims to determine if commissioning a specialised clinical trial support service impacts on study retention rates in rare disease studies.


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