See all the latest news, blogs and updates from the medical sector.
Story
Natasha's story - how we're making life more bearable
Natasha shared her story of her daughter's diagnosis and the difference the expert help from our Support and Advocacy Team has made to her.
02/08/2022
Blog
August Fundraiser of the Month - Elliot Moody
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Elliot...
01/08/2022
News
Footsteps Dance School raises funds in honour of Isaac Turner
The MPS Society has been working with Footsteps Dance School on their annual dance performance 'Steppin' Out 2022' as they wanted to...
14/07/2022
Blog
July Fundraiser of the Month - The Cooling family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have the...
30/06/2022
Condition
Fabry experiment trial to improve cardiac outcomes
Fabry disease is a genetic condition which leads to accumulation of fat or “sphingolipid” within the tissues, in particular the heart...
29/06/2022
News
MPS Society celebrates after receiving £10,000 in National Lottery funding
The MPS Society is celebrating today after being awarded £10,000 in funding from The National Lottery Community Fund, the largest funder...
14/06/2022
Condition
NICE provides positive feedback
Following the recent news that Elosulfase alfa (Vimizim) has been recommended by NICE (National Institute for Health and Care Excellence)...
08/06/2022
Blog
June Fundraiser of the Month - Anthony Wright
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Anthony...
31/05/2022
Condition
Takeda to discontinue their TAK-609 clinical trial
It is with great sadness to announce that last week, Takeda announced that after 8 years, they would not be continuing with their trial...
27/05/2022
Story
Sam's story - MPS Awareness Week
For MPS Awareness Week this year, we are looking at chasing the signs of MPS and raising awareness of the disease. Sam Brown was...
