See all the latest news, blogs and updates from the medical sector.
News
MPS Society's chance to win £1,000
MPS Society are asking for nominations to win a £1,000 Movement for Good award from Ecclesiastical Insurance Group. MPS Society is...
24/05/2021
Story
Lexie's story
Lexie's sister Tillie Mae has MPS IIIA. Here, she shares her story about what it's like growing up with a sister who has a rare disease....
21/05/2021
Story
A year in lockdown
With the world slowly opening up again, the Brentnall family are coming to terms with lockdown easing and normal life resuming. Here,...
07/05/2021
Blog
Could it be Fabry? A response
Commentary by Professor Atul Mehta, formerly Director of the Lysosomal Diseases Centre, Royal Free Hospital and University College London...
27/04/2021
Blog
We welcome Mandy who has started a brand new role at the MPS Society
Mandy Carey, Head of Project Delivery at the MPS Society, explains her past experience and current plans. I am delighted to have joined...
23/04/2021
Blog
What's new for Sophie?
Sophie Thomas, our Senior Head of Patient Services and Clinical Liaisons explains her change in role at the MPS Society and new work with...
23/04/2021
Blog
Could it be Fabry? A plea from the heart
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
22/04/2021
News
Conference 2021 Announcement
Dear friends, The COVID-19 pandemic has brought with it unprecedented challenges to the world we live in. For those affected by rare...
19/04/2021
Story
Gunner's story
Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis. Update 07 June 2021:...
16/04/2021
Blog
Look into my eyes and ask, "could it be Fabry?"
This Fabry Awareness Month, we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a...
