Meet the CEO
Bob Stevens has been Group CEO of the MPS Society since 2017. He also holds various other roles, both in the UK and globally, representing the voice of our rare disease community.
Transforming lives through support, research and awareness
We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
Support
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Research
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
Awareness
We invite you to celebrate our awareness events, share your stories and spread the word.
Christmas opening times
Our offices will be closed between Christmas and New Year but our Support and Communities Team are offering a limited out-of-hours support service for urgent signposting from 29 to 31 December, between 9am and 5pm. You can call the out-of-hours support service on 07712 653258.
Get support
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Latest from MPS Society
Blog
CSAC in 2025
CSAC is the MPS Society's Clinical Scientific Advisory Committee. Its chair Fiona Stewart looks back at an eventful year and talks about the exciting research projects the committee was able to support.
