We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.
